So we left the hospital Thursday afternoon and it was interesting between fitting the wheelchair(which Ethan does not like) and the car seat straps(which,let it be known we will not be going anywhere for the next 5-6 weeks unless for dr.appts and Greg will be with us). Ethan was super happy to come home and started acting like his old self. He has become very demanding which is ok....he is getting a little frustrated with the ability not do be able to do the things he is used to doing. Overall, he is doing well. At night seems to be the most uncomfortable for him, he does not lying on his back. WE have been trying our best to make him comfortable. He changes positions and locations every hour or two. He has been watching a good amount of t.v. which I am not a big fan of, but he also has been playing his wii games which he is doing a good job for his eye coordination and using his hands/arms which have been a little weak since the surgery. Starting hopefully Monday we will start our school work...which i think he will enjoy. The plan is still for Ethan and I to start back to school in January...if everything goes as planned.
He gets really tired about 3pm or 4pm but does not want to nap. He has been getting up around 930 every morning. Cathing and enemas seem to be the hardest part of it. It is very much a two person job.
I do have a confession that Thursday night...I officially lost it. After putting Ethan to asleep...I took a shower and cried my heart out and it made me feel so much better. He is sooo strong and has this attitude that is above awesome. I worry that his attitude will become sad, but we are doing our best to keep him smiling and laughing. WE have been giving his pain meds at night which seem to help.
Overall, we are doing pretty good and want to thank each and everyone for there support. We have had sooooo much out pouring support from our family and friends!! Thank you!
