Ethan's 6th Birthday

Lilypie Kids Birthday tickers

Saturday, September 25, 2010

So What is Going On.....On the Home Front






So we left the hospital Thursday afternoon and it was interesting between fitting the wheelchair(which Ethan does not like) and the car seat straps(which,let it be known we will not be going anywhere for the next 5-6 weeks unless for dr.appts and Greg will be with us). Ethan was super happy to come home and started acting like his old self. He has become very demanding which is ok....he is getting a little frustrated with the ability not do be able to do the things he is used to doing. Overall, he is doing well. At night seems to be the most uncomfortable for him, he does not lying on his back. WE have been trying our best to make him comfortable. He changes positions and locations every hour or two. He has been watching a good amount of t.v. which I am not a big fan of, but he also has been playing his wii games which he is doing a good job for his eye coordination and using his hands/arms which have been a little weak since the surgery. Starting hopefully Monday we will start our school work...which i think he will enjoy. The plan is still for Ethan and I to start back to school in January...if everything goes as planned.
He gets really tired about 3pm or 4pm but does not want to nap. He has been getting up around 930 every morning. Cathing and enemas seem to be the hardest part of it. It is very much a two person job.

I do have a confession that Thursday night...I officially lost it. After putting Ethan to asleep...I took a shower and cried my heart out and it made me feel so much better. He is sooo strong and has this attitude that is above awesome. I worry that his attitude will become sad, but we are doing our best to keep him smiling and laughing. WE have been giving his pain meds at night which seem to help.

Overall, we are doing pretty good and want to thank each and everyone for there support. We have had sooooo much out pouring support from our family and friends!! Thank you!

Tuesday, September 21, 2010

Our Hero...Ethan Lee



To sum it up our son is our HERO!!! Dr. Gray did a awesome job and said that it went perfectly and is glad that we did the surgery. It looks like Ethan will be in this cast for 5-6 weeks and then be put in another for 2 more weeks and then wear a brace for 6 months. So it looks like we will start Hippo and swimming in the mid of Decemeber or January. Today has been a little rough...last night was really rough but since 4pm he has perked up. He has a morphin drip and is on a pain killer. He has a slight temp. which is normal. His EGD came back perfect..he will stay on prevacid once a day for the next 6 months but now he is got to start eating regular food so we just have to convince him that he won't hurt him. We will tackle that when we get home. Thank you for all the prayers and support it means soooo very much. I start my remicade Thursday at 930am so I will be at the hospital for three hours. Most likely we will be here till Thursday or Friday.
WE are so proud of our little man he is a huge inspiration to so many people!!!

Katy Lake..What Fun!!












We had such a great time at Saint Jo, Katy Lake. Ethan drove the boat and got to swim and ride the crazy hotdog. It was great to get away and have a relaxing time. Ethan is fearless...he will try anything at least once and he loved swimming in the lake and riding the banana boat.

Tuesday, September 14, 2010

Pre-Op Tour at Cook's Hospital...



Last night the three of us went to Cook's for the Pre-Op tour. I think it is a great idea for kids that are going to have surgery in have to stay in the hospital. Ethan was very brave, asked alot of questions and was his charming self as ususal. He definetely knows that he is going to have surgery on his hip and understands that it is going to help him. We are SUPER proud of our little man!

Riding Magic...



Ethan rode Magic for the last time yesterday for at least 8 weeks...Ethan gave him a big hug and kiss...we look forward to going backs to the stables.

Saturday, September 11, 2010

Happy Grandparents Day...love, ethan




Happy Grandparents to my Fleetie, PawPaw, Poppy and Abuelita(Ita). Also, Happy Grandparents Day to my Great Grandma Clo, Great Grandma Williams and my Abuelita Victoria and Abuelito Cesar in Merida. I am very blesssed to have these people in my life and that love me sooooo much!

p.s. Happy Birthday Poppy 9/10/10...you are so young!!!

Wednesday, September 8, 2010

Miley Cyrus: The Climb..what a climb!

http://www.youtube.com/watch?v=NG2zyeVRcbs&feature=youtube_gdata_player


This song kinda sums up how I have been feeling these days. The last few weeks have been very trying. Ethan is the best little boy in the world. Ethan makes me smile so big when things are going a little rough. His attitude is a inspiration. I wish I could be strong like him. We are going to Cook's for a Pre-OP on Monday(the 13th) for Ethan to tour the hospital..I am excited for him to understand the whole process. Then on the 15th we go for the Pre-op for his surgery on the 20th...along with the long list of questions for Dr.Gray. Ethan and I have been super busy with dr.appts. Just wanted to get all our ducks in a row. Ethan and I both got our blood tested and we are both O+...so I get to give him my blood which makes me feel good. I just found out today from my GI that the best approach would to get me started on Remicade infusion..which is very serious but effective...which is what I need. I hope to start next week before Ethan's surgery. I have been in alot of pain and feeling very discourged. We feel REALLY good about Ethan's surgery and know we are doing the right thing. He loves being so free but we can tell that he is getting tired quickly, this is not like our big boy. HE always is running around everywhere. We added a seat to his walker which he really likes and allows him to rest and go back to running around. So I ask everyone out there who reads this blog for BIG prayers. We will keep you posted!!!!

The Sweetest Boy and Strongest Boy in the WORLD!!!





Ethan is soooo stong...he loves playing swords. He is back into STAR WARS:CLONE WARS. He is convinced he is a JEDI in training and has super powers. He still loves to swim...he is a BIG FISH!! I can not believe my little guy is going to be 5 years old in 2 months!!!

My Hunting Mural...Thank you Poppy!!!! I love it!!!!




Well, when my Mama is determined to get something done...she gets it done. So, she found Katelyn a art student that works at her mom's art studio "Creative Hands" in Arlington and she painted this wonderful mural in my playroom and Poppy wanted to be apart of it also. I love it!!!

Rainforest Cafe with my Dad and Mama



We had a great time at the Rainforest Cafe! Check out the new seat on my walker...thanks Ryan for putting it on for me!!

Great-Grandma Clo and Ethan


Great-Grandma Clo and Cousins!!!!




Grandma Clo came down from Okla. to Arlington to visit all of us. Cousins Jeb, Hoak and Paisley came down from Georgetown to visit also. It was great to spend time with them.