First Day of School...

I woke up this morning after 12 hours of wonderful sleep....laughing. I got ready for school and was very excited! When we got to school I felt a little anxiety going through my veins and decided to get a little emotional but after a few mintues I was fine! Mama felt realy bad for me and wanted to rush and get me but she didn't. Dad is taking me to school tommorow. I had a great day...I was talking up a storm. I hope tommorow goes as well.

Last Day of Summer Vacation...

My summer vacation was a little extended due to my shunt malfunctions but I am ready to go back to school...actuall"party school" is what I am calling it. Mama asked me the other day if I was ready to go back to school and I said, "no, Mama I stay with you", but she explained that going to school was like going to a party...you have fun..paint, color, learn and play with friends. When she explained it this way it sounds GREAT! So tommorow morning I am off to school...Mama will keep you posted!
This a pic of me relaxing after dinner...typical man!

Photographer Ethan....

I took this pic of my Dad all by myself...Mama is thinking of getting me own camera.

Pics from Hospital!

Pics from Hospital....

These are pictures of me at the hospital after my last surgery. Mama slept both nights with me. You can tell that I was back to my self!

Hello Ladies and Gentlemen....

I am back to my old self. I have been sleeping very well and talking up a storm. We have been busy running errands and getting ready for school. Mama is sure going to miss me, but it will allow her to do some stuff. I am glad to be home and relaxing for the most part.

Back in the Hospital...Again

Sooo...where do i begin....Wednesday night about 1 am Ethan woke up screaming that that his head was hurting...and then I started to get worried. He was not experiencing any other symptoms..such has vomiting, lack of appetite..nothing. Ethan never wakes up in the middle of the night...he sleeps 11-12 hours a night so I knew something was up. So the next morning I asked him again if anything hurt and he said, "Mama, my head hurts". That's when I started getting on the phone to Dr. D's nurse Sue and she said to take him in to the ER and that she would let them know we were coming. We got a CT scan and a X-ray done of his shunt. The CT scan showed that the ventricles had gotten much bigger and that the valve was not following properly. We got a room and stayed the night and had surgery this morning at 715am and everything went GREAT! Dr. D, Greg and I felt great about this! I always say go with your gut and listen to the little people they are really smart. We should be home tomorrow around lunch time. Ethan won't be going to school till the 31st of the month..so he can rest and get somethings done. Hippo and Swimming have been moved till the beginning of October...he will be ready to get back! This pic is of him after surgery...it makes me sad! He is doing GREAT!

BIG THANK YOU!

A BIG THANK YOU to everyone over the last couple of weeks...your thoughts and prayers have been very appreciated. Ethan wants to give a "BIG THANK YOU" for all the little gifts and cards that everyone gave him....and especially all the wonderful prayers that we made all over the world! This is a picture of Ethan's god-mother Andrea...she came and visited Saturday and we had a very nice time! He had just woken up from his nap..pretty cute!

We are still ALIVE!

Ethan's surgery went well...the feeding issue is still there but we have somewhat of a game plan...we will have a better idea after his swallow study on the 9th of September. He was sooo brave about the whole thing. The down side of this is that he can not swim or ride Magic for 5 weeks, which is a bigger bummer, but he still gets to go to the stables and do his PT with Mrs. Lisa. The other bad thing is that he can't horse around and engage himself and rough play or jungle gyms unless someone is right behind all the time..a discussion I will have to have with his teachers. I can not believe he starts school on Monday...I sure and going to miss him but I know he is very loved at school.
The surgery was a good thing...his valve was not working properly so that was replaced. Decompression surgery came up but between Dr. D, Greg and I that is the very last thing we want to do...so we deal with it one day at a time. I am so glad that I always go with my gut feeling and it has not failed me yet!

I TOOK THIS PIC OF MY DADDY....

MAMA AND I LOVE THIS PICTURE OF DADDY!

Mama's Blog...

I AM TYPING IN BLOCK LETTERS BECAUSE I JUST FEEL LIKE IT! SO, WHERE DO I BEGIN...LAST FRIDAY WHEN I TOOK BIG E TO HIS GI APPT...2 DAYS AFTER HIS MRI,I DISCUSSED WITH DR.O ABOUT OUR NEXT MOVE AND HE DECIDED TO LOOK UP E'S RESULTS OF THE MRI WHICH WERE IN MY OPINION VERY DISTURBING..BUT I REMAINED CALM AND WE DECIDED TO DO ANOTHER SWALLOW TEST..AKA I HATE THESE! SO I SWALLOWED IT UNTIL MONDAY..THEN DECIDED TO CALL DR.D'S NURSE WHICH IN MY OPINION I HOLD IN VERY HIGH REGARD. WE DISCUSSED AND DISCUSSED THE DIFFERENT OPTIONS WE COULD TAKE. AFTER SHE SPOKE TO DR.D I GOT MORE AND MORE UPSET..WORRIED..DEPRESSED..CONCERNED...DISORIENTED. EVERYTHING I THOUGHT I COULD HANDLE, I COULD NOT!! I WAS LOST...FOR THE FIRST TIME IN A LONG TIME! I DID NOT KNOW WHAT TO DO...BUT I HAD ANGELS WATCHING OVER ME.
ETHAN IS THE BEST THING I EVER DID...HE IS STRONG IN PERSONALITY AND IN FORCE...HE IS KIND AND GENTLE...FEARLESS BUT CAUTIOUS.....BUT HE IS MINE....ALL MINE AND HIS DADDIES. HE LOOKS LIKE HIS DADDY BUT HE HAS FIRE LIKE ME...WHICH IS GOOD. THIS WILL ALLOW HIM TO BE STRONG AT TIMES WHEN HE NEEDS IT MOST.
I HAVE BEEN CALLED SELF ABSORBED IN MY LIFE...ETHAN IS IN SOME WAY.... IT'S NOT A BAD THING...BUT WITH SAYING THAT WE WOULD DO ANYTHING FOR ANYONE TO LET THEM KNOW HOW MUCH WE TRULY LOVE THEM AND CARE FOR THEM. WE LOVE UNCONDITIONALLY..NO MATTER WHAT!
THIS LITTLE BOY IS THE BEST THING HIS DADDY AND I HAVE EVER DONE!
SO.... IT BREAKS MY HEART THAT WE WILL BE HAVING A SHUNT REVISION ON THE 13TH OF THIS MONTH...DUE TO FEEDING ISSUES WHICH I HAVE TRIED TO FIX ON MY OWN PLUS WITH THE HELP OF MRS. PATRICIA AND MRS. LAURI FOR THE LAST 3 YEARS. ALSO, POSSIBLY BECAUSE HE IS SUCH A BIG BOY,HE MAY HAVE OUT GROWN THE CATH IN HIS STOMACH...DR.D WILL NOT KNOW UNTIL HE GETS IN THERE! I HAVE SOOOOOOOO MUCH FAITH IN DR.D.
IF YOU WERE 44LBS..PLUS OVER 44INCHES TALL AT THE AGE OF 3 YEARS 9 MONTHS, IN PERFECT HEALTH... NEVER SICK WITH ANYTHING AND I MEAN ANYTHING. EATING VEGGIES AND FRUIT ABOVE THE NORMAL INTACT FOR A CHILD YOUR AGE...YOU WOULD NOT WANT TO RUIN THAT..JUST EATING OFF OF PUREE FOOD 80% OF THE TIME....PLUS SWIMMING 5X A WEEK, HIPPO THERAPY,PT THERAPY,OT AND SPEECH/FEEDING...REMARKABLE DON'T YOU THINK!!!! I WOULD NOT RUIN IT EITHER BUT HE DESERVES THE OPPORTUNITY AND IF IT DOES NOT WORK..IT IS WHAT IT IS.
THIS BOY RUNS IN HIS WALKER AND He IS CLOSE TO BE DOING IT ALL ON HIS OWN...WHICH MAKES IT ALL SOOO BITTER SWEET! HE IS BEING PRAYED FOR ALL OVER THIS WORLD! HE IS OUR HERO!!!! BE PRAYING FOR HIM!

The New Friends I have Made...

My Dad bought me 3 little fishes..named Nemo, Daddy Nemo and Sucker. I really liked them for about a week and then decided that Mama needed a new hobby.... and now there her best buddies...they are getting very fat thanks to Mama...everyone knows why..if u are starving when you get here you won't leave here hungry...look at me! Also, i met a very special friend named Atho..my Uncle Stewart's baby..he was very sweet to me and of course I was not scared of the 5 foot animal..we were friends instantly. Even my Ita(aka Abuelita Angelina)loved him like crazy...which is very rare. I have been taliking and about him all week!