Friday, August 7, 2009
Mama's Blog...
I AM TYPING IN BLOCK LETTERS BECAUSE I JUST FEEL LIKE IT! SO, WHERE DO I BEGIN...LAST FRIDAY WHEN I TOOK BIG E TO HIS GI APPT...2 DAYS AFTER HIS MRI,I DISCUSSED WITH DR.O ABOUT OUR NEXT MOVE AND HE DECIDED TO LOOK UP E'S RESULTS OF THE MRI WHICH WERE IN MY OPINION VERY DISTURBING..BUT I REMAINED CALM AND WE DECIDED TO DO ANOTHER SWALLOW TEST..AKA I HATE THESE! SO I SWALLOWED IT UNTIL MONDAY..THEN DECIDED TO CALL DR.D'S NURSE WHICH IN MY OPINION I HOLD IN VERY HIGH REGARD. WE DISCUSSED AND DISCUSSED THE DIFFERENT OPTIONS WE COULD TAKE. AFTER SHE SPOKE TO DR.D I GOT MORE AND MORE UPSET..WORRIED..DEPRESSED..CONCERNED...DISORIENTED. EVERYTHING I THOUGHT I COULD HANDLE, I COULD NOT!! I WAS LOST...FOR THE FIRST TIME IN A LONG TIME! I DID NOT KNOW WHAT TO DO...BUT I HAD ANGELS WATCHING OVER ME.
ETHAN IS THE BEST THING I EVER DID...HE IS STRONG IN PERSONALITY AND IN FORCE...HE IS KIND AND GENTLE...FEARLESS BUT CAUTIOUS.....BUT HE IS MINE....ALL MINE AND HIS DADDIES. HE LOOKS LIKE HIS DADDY BUT HE HAS FIRE LIKE ME...WHICH IS GOOD. THIS WILL ALLOW HIM TO BE STRONG AT TIMES WHEN HE NEEDS IT MOST.
I HAVE BEEN CALLED SELF ABSORBED IN MY LIFE...ETHAN IS IN SOME WAY.... IT'S NOT A BAD THING...BUT WITH SAYING THAT WE WOULD DO ANYTHING FOR ANYONE TO LET THEM KNOW HOW MUCH WE TRULY LOVE THEM AND CARE FOR THEM. WE LOVE UNCONDITIONALLY..NO MATTER WHAT!
THIS LITTLE BOY IS THE BEST THING HIS DADDY AND I HAVE EVER DONE!
SO.... IT BREAKS MY HEART THAT WE WILL BE HAVING A SHUNT REVISION ON THE 13TH OF THIS MONTH...DUE TO FEEDING ISSUES WHICH I HAVE TRIED TO FIX ON MY OWN PLUS WITH THE HELP OF MRS. PATRICIA AND MRS. LAURI FOR THE LAST 3 YEARS. ALSO, POSSIBLY BECAUSE HE IS SUCH A BIG BOY,HE MAY HAVE OUT GROWN THE CATH IN HIS STOMACH...DR.D WILL NOT KNOW UNTIL HE GETS IN THERE! I HAVE SOOOOOOOO MUCH FAITH IN DR.D.
IF YOU WERE 44LBS..PLUS OVER 44INCHES TALL AT THE AGE OF 3 YEARS 9 MONTHS, IN PERFECT HEALTH... NEVER SICK WITH ANYTHING AND I MEAN ANYTHING. EATING VEGGIES AND FRUIT ABOVE THE NORMAL INTACT FOR A CHILD YOUR AGE...YOU WOULD NOT WANT TO RUIN THAT..JUST EATING OFF OF PUREE FOOD 80% OF THE TIME....PLUS SWIMMING 5X A WEEK, HIPPO THERAPY,PT THERAPY,OT AND SPEECH/FEEDING...REMARKABLE DON'T YOU THINK!!!! I WOULD NOT RUIN IT EITHER BUT HE DESERVES THE OPPORTUNITY AND IF IT DOES NOT WORK..IT IS WHAT IT IS.
THIS BOY RUNS IN HIS WALKER AND He IS CLOSE TO BE DOING IT ALL ON HIS OWN...WHICH MAKES IT ALL SOOO BITTER SWEET! HE IS BEING PRAYED FOR ALL OVER THIS WORLD! HE IS OUR HERO!!!! BE PRAYING FOR HIM!
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2 comments:
We will be thinking of and praying for Ethan on the 13th. He's a good-lookin' boy! I love this picture of him.
I don't understand why he needs a revision. ???? Does the tube in his tummy need to be replaced??
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